10/26/07 1 pm

We are still trying to find some routine back at home. Still not easy on Grace, especially since the tooth fairy forgot to come last night. Hopefully she will find the way tonight. Mikayla and I slept downstairs again last night. She hasn't needed any pain medication for last 2 days so the vomiting is gone. Occasionally she gets a little nausea. Her balance continues to improve. If she tries to move too fast she stumbles a little bit. We have to be careful with the stairs. The steroids have kept her up, last night I woke up with her standing and staring at me. I got up to find every light down stairs on, the cupboards open (of course she had to eat), she had played with her new playdough and worked on some crafts people have brought. Today she wants to try to go to spend some time at school. Actually she wants to spend the whole day there but we will limit it some with Sasha there. We are going back to Riley outpatient center on Tuesday Morning to meet with the oncologists. Her incisions look good. So you know she has two wounds on the back of her head one about 1.5 inches the the other about 2 inches as a half circle, Fortunately her hair hides it some. She also has an incision on her right abdomen where they pulled the shunt through, it is about 2 -2.5 inches. Her tilting of the head has already improved as well as the headaches with the shunt. Now if we can get the large tumor to shrink. Sasha and I are so amazed by the generiosity everyone has shown. We truly have a great support system of friends and family. Sasha and I were talking on the way home on how God lead us in making the best decision to come to Kendallville 3 years ago. Everyone has been wonderful. Mikayla thinks it is Christmas. We know of the crafts and activity pads and stuffed animals and toys will come in great use over the coming year for trips to riley and to chemotherapy. I am going to check on mikayla ( she might have eaten another meal by now) then I will do another blog on two stories of mikayla in the hospital. Chris