We did get home last night around 8pm. Every minute of yesterday, Mikayla asked when she could go home. She didn't want to do anything because I think she thought if she started doing something (craft, tv, playroom) she would miss going home.
Ah, home. I think at times Chris & I got more rest in the hospital. Seemed today someone was crying or whining every minute of the day. Everything hit me yesterday that this is so real and that she is going through chemo. All the info we received yesterday about blood counts, medicine, side effects, hosptial visits, etc. just overwhelmed me with what all we are going to have to deal with over the next two years. As we were leaving the hospital yesterday, Mikayla's nurse said "See you next time!" I wanted to shout "Hopefully there won't be a next time!!" but I know that there probably will.
The good news is that at least for this month and next month (the 1st 10 weeks of the program) we are set up for our chemo treatments at Lutheran. Every Tuesday from now until Dec. 18 she will go there for a chemo treatment. Should last around 3-4 hours. (meds go in through her port line - similar to being hooked up through an IV, but with the port, they do not have to put an iv in everytime.) She will get blood counts each week to check her levels and to make sure they have not dropped too low (which would make her more prone to infection) The week of the 18th we start 5 days of oral meds (at home) and then we have a 3 week rest period of no meds, but just going in weekly for blood draws. Then we will have another MRI and re-evaluate treatment if necessary. If all looks good then the above cycle continues for 60 more weeks!
She was a little nauseous this am, but we battled that with meds. This evening she was complaining of back pain. One of the side effects is achiness and pain in the legs & back. It is so hard to see your normally high energy, spirited, smiley little girl who never sits still be feeling so bad, barely crack a smile all day and know that you can't do anything about it. She wanted to go to school all day, I finally took her in around 2pm. That was the happiest I had seen her all day long. Depending on how she feels, we will probably try a 1/2 day tomorrow.
Don't be alarmed if we don't update everyday...between keeping up with Mikayla and chasing Jacob (he picked a wonderful time of the terrible twos to kick into high gear) and running Grace to her activities there isn't much computer time. Thank you once again for your thoughts and prayers. - Sasha
Subscribe to:
Post Comments (Atom)
1 comment:
We appreciate all the postings you have made time for. I can't imagine how much your worlds have been turn upside down and you've still make time for this blog. But I think I speak for most when I say that we understand if you don't get to the computer more than once a month let alone once a day. You certainly don't need extra stress or pressure in your lives. Our love and prayers are with you.
Post a Comment